Analyzing the Legal Labyrinth: Current Trends in Genetic Research and Their Legal Perspectives


Abstract views: 75 / PDF downloads: 90

Authors

  • Ollanazarova Mamura Muzaffarovna Tashkent State University of Law

DOI:

https://doi.org/10.59022/ijlp.84

Keywords:

Genetic Research, Legal Issues, Intellectual Property Rights, Data Privacy, Comparative Analysis, Legal Frameworks, Policy Analysis

Abstract

Genetic research has experienced rapid advancements in recent years, giving rise to a host of legal challenges at the intersection of intellectual property rights, data privacy, and ethical concerns. This article aims to analyze a key legal issue related to genetic research and propose potential solutions. We conducted a literature review, comparative analysis, and policy evaluation to identify the shortcomings of existing legal frameworks and highlight best practices from different jurisdictions. Our findings indicate that current legal frameworks may not adequately address the challenges posed by genetic research. We propose potential solutions, such as developing a comprehensive legal framework for genetic research, encouraging international collaboration and harmonization of laws and regulations, and implementing strong oversight mechanisms. By addressing these legal challenges and implementing the proposed solutions, policymakers and stakeholders can create a stable and predictable environment for genetic research that maximizes its benefits while minimizing potential harms and inequities.

References

Contreras, J. L., & Sherkow, J. S. (2017). CRISPR, surrogate licensing, and scientific discovery. Science, 355(6326), 698-700. https://doi.org/10.1126/science.aam8335

Cook-Deegan, R. (2017). Patents, secrecy, and DNA. Science, 355(6322), 381-383. https://doi.org/10.1126/science.aam5956

Knoppers, B. M. (2014). Framework for responsible sharing of genomic and health-related data. The HUGO Journal, 8(1), 1-6. https://doi.org/10.1186/s11568-014-0003-1

Mittelstadt, B. D., & Floridi, L. (2016). The ethics of big data: current and foreseeable issues in biomedical contexts. Science and Engineering Ethics, 22(2), 303-341. https://doi.org/10.1007/s11948-015-9652-2

Global Alliance for Genomics and Health. (n.d.). Framework for responsible sharing of genomic and health-related data. Retrieved from https://www.ga4gh.org/genomic-data-toolkit/regulatory-ethics-toolkit/framework/

Allah Rakha, Naeem, “HOW THE EU CREATES LAWS”. Eurasian Journal of Law, Finance and Applied Sciences, Vol 2, Issue No. 6 (2022), pp. 4-9, https://doi.org/10.5281/zenodo.6615907

National Institutes of Health. (n.d.). Genomic data sharing policy. Retrieved from https://grants.nih.gov/grants/guide/notice-files/NOT-OD-14-124.html

World Intellectual Property Organization. (n.d.). Genetic resources, traditional knowledge and folklore. Retrieved from https://www.wipo.int/tk/en/

European Commission. (2018). General Data Protection Regulation (GDPR). Retrieved from https://gdpr-info.eu/

U.S. National Library of Medicine. (n.d.). Informed consent for genetics research. Retrieved from https://www.nlm.nih.gov/medlineplus/informedconsentforgeneticsresearch.html

Organisation for Economic Co-operation and Development. (2017). OECD Guidelines on the Protection of Privacy and Transborder Flows of Personal Data. Retrieved from https://www.oecd.org/sti/ieconomy/oecdguidelinesontheprotectionofprivacyandtransborderflowsofpersonaldata.htm

Published

2023-07-12

How to Cite

Ollanazarova Mamura Muzaffarovna. (2023). Analyzing the Legal Labyrinth: Current Trends in Genetic Research and Their Legal Perspectives. International Journal of Law and Policy, 1(5). https://doi.org/10.59022/ijlp.84

Issue

Section

Articles